Healthy Living — Your Life on the Go
Living an active life with hemophilia B means learning all you can about your condition and the resources available to you. In addition to healthy eating and regular exercise, you’ll want to do all you can to prevent problems that might slow you down. And you’ll want to know where you can turn to learn more about hemophilia B and the hemophilia B community. If you are a person living with hemophilia B, talk to your doctor about what exercises are right for you.
Hemophilia B Reference Guide – glossary, abbreviations, and a list of Web sites to help you better understand terminology you may encounter
Living With Hemophilia B – a useful
72-page booklet addressing what
hemophilia B is, how it may be treated, lifestyle tips by age group, and how to use an infusion log to keep on top of BeneF
IX therapy
National Hemophilia Foundation Sports Ratings – simple chart listing activities rated safe through dangerous that you and your health care provider can use to assess the risk levels of activities you or your child may be considering
Ask your doctor about prevention
Prevention means thinking ahead and infusing factor before a particular activity that might cause a bleed. A preventive regimen, including preventive infusions, may help you participate in more activities. Contact your health care provider to discuss whether preventive treatment might be right for you.
Following your regimen is important
If your doctor has prescribed a preventive regimen, it’s important to follow it as instructed.
Keeping healthy
One of the keys to keeping joints healthy is learning how to stay active while playing it safe. Participating in low-impact sports and activities is a great way to have fun with your friends and family while maintaining a healthy lifestyle.