Taking the proactive approach
Before a race, you've trained your body to win. When it's time to take the final exam, you've studied hard to ace it. So if you think there's a chance for a bleed, you've got to be on top of the situation.
Below is a list of downloadable tools that can help you or your child plan ahead.
Conversation start-up tips
Use this guide as a starting point for conversations about hemophilia B with friends, co-workers, teachers, and other parents.
Click to download
Caregiver instructions form
Keep this form handy in case of an emergency. It contains valuable information, like your doctor's name, phone number, and other pertinent information others may need to know about you or your child's condition.
Click to download
Travel checklist
Getting ready for a big trip can be a lot of work, and stressful too. Use this checklist to make sure you bring everything you need: your Rapid Reconstitution (R2) Kit, the proper amount of factor, a list of doctor's names, and hospitals from points A to B.
Click to download
College checklist
Going away to school means gaining independence for the first time. Keep this checklist in a place that you see on a regular basis (like on your desk where you do homework) to remind you to take your factor and help you manage your hemophilia B.
Click to download
