Hemophilia B 101

Here's a few resources that may interest you. Click the links below to download a PDF file.

Hemophilia B Glossary

A comprehensive glossary of hemophilia B terms: descriptions of the disease, genetics, symptoms, treatment, related conditons, and the role of hemophilia treatment centers. Click to download

Living with Hemophilia

Throughout every life stage, the experience of living with hemophilia B is a unique journey and a growing process. Living with hemophilia B takes a comprehensive look at the disease and its treatment. This booklet also lets you and your family know what to expect when living with hemophilia B. It provides an overview of available information resources. Click to download

B2B Books

The B2B program addresses the different needs associated with having hemophilia B during each stage of life through expert advice and firsthand accounts.

Early Childhood Click to download

Preteens Click to download

Teens/Young Adults Click to download

Older Adults Click to download

What Is BeneFix?

BeneFix® Coagulation Factor IX (Recombinant) is an injectable medicine that is used to help control and prevent bleeding in people with hemophilia B. Hemophilia B is also called congenital factor IX deficiency or Christmas disease.

BeneFix is NOT used to treat hemophilia A.

Important Safety Information for BeneFix

• BeneFix is contraindicated in patients who have manifested life-threatening, immediate hypersensitivity reactions, including anaphylaxis, to the product or its components, including hamster protein.

• Call your health care provider right away if your bleeding is not controlled after using BeneFix.

• Allergic reactions may occur with BeneFix. Call your health care provider or get emergency treatment right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, your lips and gums turning blue, fast heartbeat, facial swelling, faintness, rash or hives.

• Your body can make antibodies, called "inhibitors," which may interfere with the effectiveness of BeneFix.

• If you have risk factors for developing blood clots, such as a venous catheter through which BeneFix is given by continuous infusion, BeneFix may increase the risk of abnormal blood clots. The safety and efficacy of BeneFix administration by continuous infusion have not been established.

• Some common side effects of BeneFix are nausea, injection site reaction, injection site pain, headache, dizziness and rash.

*BeneFix was approved February 11, 1997.

Please see full Prescribing Information for BeneFix.

Need help accessing Pfizer medicines?

Pfizer's RSVP program may be able to help.

Call 1-888-327-RSVP (7787) or visit http://www.HemophiliaVillage.com/RSVP

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What Is BeneFix?

BeneFix^® Coagulation Factor IX (Recombinant) is an injectable medicine that is used to help control and prevent bleeding in people with hemophilia B. Hemophilia B is also called congenital factor IX deficiency or Christmas disease.

BeneFix is NOT used to treat hemophilia A.

Important Safety Information for BeneFix

• BeneFix is contraindicated in patients who have manifested life-threatening, immediate hypersensitivity reactions, including anaphylaxis, to the product or its components, including hamster protein.

• Call your health care provider right away if your bleeding is not controlled after using BeneFix.

• Allergic reactions may occur with BeneFix. Call your health care provider or get emergency treatment right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, your lips and gums turning blue, fast heartbeat, facial swelling, faintness, rash or hives.

• Your body can make antibodies, called "inhibitors," which may interfere with the effectiveness of BeneFix.

• If you have risk factors for developing blood clots, such as a venous catheter through which BeneFix is given by continuous infusion, BeneFix may increase the risk of abnormal blood clots. The safety and efficacy of BeneFix administration by continuous infusion have not been established.

• Some common side effects of BeneFix are nausea, injection site reaction, injection site pain, headache, dizziness and rash.

Please see full Prescribing Information for BeneFix.