Resources | BeneFix

Patient Affairs Liaisons

Our commitment to you includes the Pfizer Patient Affairs Liaison

Solely dedicated to providing support for the community, your Pfizer Patient Affairs Liaison is available to help you access the support and information you need.

Patient Affairs Liaisons are not measured or awarded based on sales performance nor will they ask you to switch products.

Find your Pfizer Patient Affairs Liaison

Resources

BeneFix travel case

The 4-in-1 portable case

Keep everything you need to infuse in 1 place

Specially designed to hold up to 4 Rapid Reconstitution Kits and the additional supplies you might need to infuse on the go
Built with a foam interior that keeps your factor safe so it’s ready when you need it

Ask your Patient Affairs Liaison about how you can get a BeneFix travel case.

Advocacy groups

Find out who’s supporting the hemophilia community

National advocacy groups

Getting support means gaining momentum. Below is a list of some of the top advocacy groups that are highly involved within the hemophilia B community.

The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with hemophilia B. Its mission is to make quality of life the focal point of treatment for individuals with hemophilia in the 21st century. The site provides information about events and educational opportunities, as well as current and past newsletters.

www.coalitionforhemophiliab.org

The Hemophilia Federation of America (HFA) assists and advocates for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders.

www.hemophiliafed.org

The National Hemophilia Foundation (NHF) was founded in 1948. NHF is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy, and research.

www.hemophilia.org

A member of the World Health Organization since 1969, the World Federation of Hemophilia (WFH) works to improve and sustain treatment of people around the world with hemophilia and other inherited bleeding disorders.

www.wfh.org

These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is
not responsible for the content or services of these sites.

Important Safety Information and Indication

Important Safety Information

BeneFix is contraindicated in patients who have manifested life-threatening, immediate hypersensitivity reactions, including anaphylaxis, to the product or its components, including hamster protein.
Call your health care provider right away if your bleeding is not controlled after using BeneFix.
Allergic reactions may occur with BeneFix. Call your health care provider or get emergency treatment right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, your lips and gums turning blue, fast heartbeat, facial swelling, faintness, rash or hives.
Your body can make antibodies, called “inhibitors,” which may stop BeneFix from working properly.
If you have risk factors for developing blood clots, such as a venous catheter through which BeneFix is given by continuous infusion, BeneFix may increase the risk of abnormal blood clots. The safety and efficacy of BeneFix administration by continuous infusion have not been established.
Some common side effects of BeneFix are nausea, injection site reaction, injection site pain, headache, dizziness and rash.

Please see full Prescribing Information for BeneFix.

What Is BeneFix?

BeneFix, Coagulation Factor IX (Recombinant), is an injectable medicine that is used to help control and prevent bleeding in people with hemophilia B. Hemophilia B is also called congenital factor IX deficiency or Christmas disease.

BeneFix is NOT used to treat hemophilia A.