Pfizer Hemophilia Connect 1-888-733-2030

Advocacy groups

Source quick links to some of the associations supporting the hemophilia community

National advocacy groups

The National Bleeding Disorders Foundation (NBDF) was founded in 1948. NBDF is dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy, and research.

Note: Local chapter directories and a list of other bleeding disorder organizations near you are available on this website.
The Coalition for Hemophilia B (CHB) was founded in 1990 by Joyce and John Taylor when their son was diagnosed with hemophilia B. Its mission is to make quality of life the focal point of treatment for individuals with hemophilia in the 21st century. The site provides information about events and educational opportunities, as well as current and past newsletters.

The Hemophilia Federation of America (HFA) assists and advocates for safe, affordable, and obtainable blood products and health coverage, as well as a better quality of life for all people with bleeding disorders.

Note: A list of local member organizations near you is available on this website.

International advocacy groups

A member of the World Health Organization since 1969, the World Federation of Hemophilia (WFH) works to improve and sustain treatment of people around the world with hemophilia and other inherited bleeding disorders.

Save One Life was founded in 2000 by Laureen A. Kelley, author, president of LA Kelley Communications, and mother of a son with hemophilia. The mission of Save One Life is to empower individuals and families affected by bleeding disorders in countries with developing hemophilia programs through direct financial assistance and access to medical treatment.

These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is not responsible for the content or services of these sites.
Important Safety Information
  • BeneFix is contraindicated in patients who have manifested life-threatening, immediate hypersensitivity reactions, including anaphylaxis, to the product or its components, including hamster protein.
  • Call your health care provider right away if your bleeding is not controlled after using BeneFix.
  • Allergic reactions may occur with BeneFix. Call your health care provider or get emergency treatment right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, your lips and gums turning blue, fast heartbeat, facial swelling, faintness, rash, or hives.
  • Your body can make antibodies, called “inhibitors,” which may stop BeneFix from working properly.
  • If you have risk factors for developing blood clots, such as a venous catheter through which BeneFix is given by continuous infusion, BeneFix may increase the risk of abnormal blood clots. The safety and efficacy of BeneFix administration by continuous infusion have not been established.
  • Some common side effects of BeneFix are fever, cough, nausea, injection site reaction, injection site pain, headache, dizziness, and rash.
What Is BeneFix?

BeneFix, Coagulation Factor IX (Recombinant), is an injectable medicine that is used to help control and prevent bleeding in people with hemophilia B. Your doctor might also give you BeneFix before surgical procedures.

BeneFix is NOT used to treat hemophilia A.

Please see full Prescribing Information for BeneFIX.

Patients should always ask their doctors for medical advice about adverse events.

You are encouraged to report adverse events related to Pfizer products by calling 1-800-438-1985 (U.S. only). If you prefer, you may contact the U.S. Food and Drug Administration (FDA) directly. Visit www.fda.gov/MedWatch or call 1-800-FDA-1088 .

You are encouraged to report adverse events related to Pfizer products by calling 1-800-438-1985 (U.S. only). If you prefer, you may contact the U.S. Food and Drug Administration (FDA) directly. Visit www.fda.gov/MedWatch or call 1-800-FDA-1088.

Persons depicted throughout this website are not actual BeneFIX patients unless stated otherwise.

© 2026 Pfizer Inc. All rights reserved.
January 2026
PP-BEN-USA-1065
Pfizer logo

Important Safety Information and Indication

See More
Important Safety Information
  • BeneFix is contraindicated in patients who have manifested life-threatening, immediate hypersensitivity reactions, including anaphylaxis, to the product or its components, including hamster protein.
  • Call your health care provider right away if your bleeding is not controlled after using BeneFix.
  • Allergic reactions may occur with BeneFix. Call your health care provider or get emergency treatment right away if you have any of the following symptoms: wheezing, difficulty breathing, chest tightness, your lips and gums turning blue, fast heartbeat, facial swelling, faintness, rash, or hives.
  • Your body can make antibodies, called “inhibitors,” which may stop BeneFix from working properly.
  • If you have risk factors for developing blood clots, such as a venous catheter through which BeneFix is given by continuous infusion, BeneFix may increase the risk of abnormal blood clots. The safety and efficacy of BeneFix administration by continuous infusion have not been established.
  • Some common side effects of BeneFix are fever, cough, nausea, injection site reaction, injection site pain, headache, dizziness, and rash.
What Is BeneFix?

BeneFix, Coagulation Factor IX (Recombinant), is an injectable medicine that is used to help control and prevent bleeding in people with hemophilia B. Your doctor might also give you BeneFix before surgical procedures.

BeneFix is NOT used to treat hemophilia A.

Please see full Prescribing Information for BeneFIX.

Patients should always ask their doctors for medical advice about adverse events.

You are encouraged to report adverse events related to Pfizer products by calling 1-800-438-1985 (U.S. only). If you prefer, you may contact the U.S. Food and Drug Administration (FDA) directly. Visit https://www.fda.gov/MedWatch or call 1-800-FDA-1088 .

You are encouraged to report adverse events related to Pfizer products by calling 1-800-438-1985 (U.S. only). If you prefer, you may contact the U.S. Food and Drug Administration (FDA) directly. Visit https://www.fda.gov/MedWatch or call 1-800-FDA-1088.

Persons depicted throughout this website are not actual BeneFix patients.

Copyright © 2026 Pfizer Inc. All rights reserved.
January 2026
PP-BEN-USA-1065
Pfizer Logo